You can demyelinate me but you cannot destroy me

I have Chronic Inflammatory Demyelinating Polyneuropathy, or CIDP. It is the chronic form of Guillian-Barre Syndrome. Similar to Multiple Sclerosis, it’s an autoimmune disease that causes demyelination of the nerves, resulting in a whole host of neurological problems. It’s also a rare disease,...

Living with CIDP

Merry Christmas!

Once again, time (and life) has gotten away from me however, you are all in my thoughts.  So, on this day of all days, I wanted to take a moment to wish you all a merry Christmas and leave you with a quote that is resonating with me right now.  I hope to write a proper blog post soon.   Until then, I sincerely pray that you and yours are blessed with good health, good cheer, and lots of loved ones …

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Search Engine Q & A

One of the things I like to do from time to time is read over the search terms people use that lead them to find Demyelinated not Destroyed.  Some of them are fairly amusing, but the majority of them come from people who are simply looking for answers to questions they have about a variety of things.  Since I know Demyelinated not Destroyed doesn’t answer some of them specifically, I decided to go ahead and do that with this post. …

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Living with CIDP – On shaky ground UPDATE

My plan to veg out on the couch and relax last night worked!  I got 10 hours of sleep last night and woke up feeling much better today.  I’m taking it easy again today to make sure my body gets the rest it needs right now.  I know from experience that if I overdo it again so soon after a bad flare, I’ll wind up back at square one. The weather also seems to be cooperating, which I’m thankful for.  …

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Living with CIDP – On shaky ground

Today is one of those days.  Everyone with CIDP has them.  Today it’s my turn.  You know the kind where it seems everything is stacked up against you,  your symptoms are flaring left and right, and there’s nothing you can do about it except put your head down and solider on. I should have known I’d have one of those days today.  I woke up exhausted.  That’s always an interesting experience.  I got over eight hours of sleep last night.  …

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Gettin’ Swank-y

In an attempt to take control of the things that I can in this crazy life of mine and keep my hiney out of a wheelchair, I decided to give the Swank MS Diet a try. Over 60 years ago, Dr. Roy Swank discovered that a low-fat diet, high in fruits, grains, and vegetables, can help alleviate the symptoms of Multiple Sclerosis while building up the myelin sheathe that surrounds the body’s nerve endings, making them less prone to damage …

Posted in Alternative Medicine, Healing Demyelination, Living with CIDP, Living with MS, Patient, Support, Treatment, Western Medicine | Tagged , , , , , , , , , , , , , , , , , | 3 Comments

Living with CIDP – Down but not out

I have been staring at a blank Word doc page for what seems like hours, the blinking cursor mocking me, as I struggle to put into words emotions about things that I’ve been loathe to let myself feel for years, but desperately need to if I’m going to start living with CIDP instead of suffering from it again. One of the goals I had when I started this blog was to be brutally honest about my life with CIDP.  I …

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Living with CIDP – Butterflies

As upbeat and chipper as I try to be for everyone, I would be lying if I said I don’t occasionally get saddled with my own feelings of depression and pity parties, particularly where my CIDP is concerned. Today was one of the days where I’ve been feeling particularly down for a variety of reasons, most of which have to deal with my disease. Then, I came across this picture: For those who may not be able to see the …

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Living with CIDP – Looking for answers

In looking at my blog stats, I noticed how many people that have made their way to my humble little blog about demyelinating diseases from search engines like Google and AOL Search. I looked over the search terms that people are using to find their way to my blog and I was struck by how many people there are out there that looking for answers. My heart breaks for you all. I’m struggling back tears as I write this. I …

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Living with CIDP – Strength and weakness

What is strength?  What is weakness?  I’ve been having to ask myself these questions a lot lately.  Having a disease like CIDP can often challenge long held views and definitions of even the most innocent of words. Lately, I’ve been dealing with legs that have decided being weak and unsteady is the way to go.  The toes on my right foot are injured from repeatedly stubbing them on the single step that leads up from my family room to my …

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Living with CIDP – Dealing with uncertainty

One of the biggest problems of living with Chronic Inflammatory Demyelinating Polyneuropathy is having to deal with the uncertainty that it brings.  It’s hard to want to dream of the future or make plans when you don’t know how you’ll be doing from day to day.  I really believe that the uncertainty that surrounds CIDP is almost as crippling as the demyelination it causes. While the neuropathy and demyelination affect you on a physical level, uncertainty hits you on an …

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