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The Invisible Illness Roundtable has been postponed until next week.  I’m very sorry for the late notice on this, but I was waiting on an e-mail from the organizer to confirm it.  I’ll keep everyone updated as soon as I hear more about it.

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I’ve been invited to participate in an Invisible Illness Health Activist Roundtable that will take place on Monday, September 24th at Noon EST. WEGO Health is partnering with Christine Miserandino, author of the Spoon Theory and founder of ButYouDontLookSick.com to host a series of roundtables as way to raise awareness for Invisible Illness.  They have asked health activists from a variety of different invisible illnesses to participate and I was one of them! It will take place online as well …

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It’s Been Awhiletop comments

Again, I find myself having to apologize for not posting regularly.  The past nine months have been hard for me and my family.  My mother-in-law was diagnosed with breast cancer that had spread to her lymph nodes.  Her diagnosis prompted a very prolonged move from Texas back to California where Murphy’s Law was in full effect.  I could write many blog posts over what happened, let me tell you!  Thankfully, my mother-in-law is currently doing fine and I sincerely pray …

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Merry Christmas!top comments

Once again, time (and life) has gotten away from me however, you are all in my thoughts.  So, on this day of all days, I wanted to take a moment to wish you all a merry Christmas and leave you with a quote that is resonating with me right now.  I hope to write a proper blog post soon.   Until then, I sincerely pray that you and yours are blessed with good health, good cheer, and lots of loved ones …

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Weekly Dose of Hope

The three things I’m thankful for this week are: My readers.  Knowing that you care makes my bad days easier to handle.  I hope that knowing I care about you makes your bad days easier to handle, too.  Having the ability to help out a group of fellow writers with their website. My older brother’s offer to  help tame the jungle that has become my backyard. What I’m looking forward to this week: Finishing the plans for my Deleting Demyelination …

 

Site News – I need your input!

Guess what I found?  A WordPress plugin that will let you type in whatever question you want and post it for myself or other readers to answer.  Isn’t that neat? The Q&A widget powered by Degree3 is located on the upper right sidebar.  All questions posted are public, so you won’t want to post anything terribly personal, however I get the questions e-mailed to me on a daily basis and will answer them as quickly as possible.  What makes this …

 

Search Engine Q & A

One of the things I like to do from time to time is read over the search terms people use that lead them to find Demyelinated not Destroyed.  Some of them are fairly amusing, but the majority of them come from people who are simply looking for answers to questions they have about a variety of things.  Since I know Demyelinated not Destroyed doesn’t answer some of them specifically, I decided to go ahead and do that with this post. …

 

Living with CIDP – On shaky ground UPDATE

My plan to veg out on the couch and relax last night worked!  I got 10 hours of sleep last night and woke up feeling much better today.  I’m taking it easy again today to make sure my body gets the rest it needs right now.  I know from experience that if I overdo it again so soon after a bad flare, I’ll wind up back at square one. The weather also seems to be cooperating, which I’m thankful for.  …

 

Living with CIDP – On shaky ground

Today is one of those days.  Everyone with CIDP has them.  Today it’s my turn.  You know the kind where it seems everything is stacked up against you,  your symptoms are flaring left and right, and there’s nothing you can do about it except put your head down and solider on. I should have known I’d have one of those days today.  I woke up exhausted.  That’s always an interesting experience.  I got over eight hours of sleep last night.  …

 

Weekly Dose of Hope – Revamped!

The weekly dose of hope is getting a slight makeover! To keep things on a positive note, I’m going to post three things that I’m thankful for from the previous week, as well as at least one thing I’m looking forward to in the coming week.  I encourage you all to do the same by leaving a comment here, on Demyelinated not Destroyed’s Facebook page, or by sending a tweet to @notdestroyed. If you’re struggling right now with anything or …